Monday, February 17, 2014
Even the Strongest Feel Weak Sometimes
Today, I am weak emotionally. For more than 6 weeks now, I have been fighting a massive sinus infection that just will not go away. I have dealt with migraine after migraine, several rounds of antibiotics and steroids, CT scans, blood work, exhaustion, and still trying to work and get my business off the ground. The longer it continues, the more likely surgery will be needed to clear the infection out. Quite honestly though, I would welcome it.
Over the weekend, the infection made its way into my chest and bronchitis is setting in: the figurative straw that broke the camel's back. I don't look sick, only tired. I don't sound sick (aside from the cough), just sad. But I am sick and I am tired and sad. Weeks of fighting this illness has left me short on spoons with nothing left in reserves and I still have another 2 weeks before I can see the specialist. The frustration and annoyance has compounded into an overall feeling of disappointment and feeling of hopelessness, that I will never be healthy again.
Before you freak out, yes, I know this is not true, but our emotions do not always follow our knowledge. I know health will come again and I will ignore the lies that my bipolar can tell me, but the feelings are still there and need to be acknowledged. Denying those feelings only make things worse. So today, I acknowledge my feeling of weakness. I acknowledge my desire of having someone just hold me and take care of me for a few days so I don't have to think about all the things I want to be accomplishing and can't.
I accept that I must take care of myself first, but that doesn't mean that I won't feel the frustration and disappointment of wanting to take care of those around me. So this is me asking for help from my family and friends, if you have a few minutes, drop me a message, give me a ring, or stop by my house to visit. Distract me from the disappointment of being ill. Tell me about your day or a funny joke. Run your big ideas by me so I have something else to ruminate on instead of feeling crappy. If you can spare it, run an errand for me or drop off a side dish for dinner so I don't feel quite so guilty for not being able to care for my family as I would like. Forgive me if I sound down in the dumps and understand that I am doing the best I can. Sometimes, we just need a little helping hand.
Sunday, January 12, 2014
This Is Me, Take It or Leave It
Wednesday, December 11, 2013
Honoring my Mind and Body
This morning, I realized I have not been honoring who I am. I am NOT perfect, and in reality, do I really want to be perfect? I think of perfect and I see no room for fun or spontaneous actions. I see stiff, prudish, and boring. I don't see the crazy fun antics I like to incorporate into my life. No, I am not perfect, but I keep punishing myself for not being perfect. I chastise myself when I cannot fall asleep at a decent enough time to work the next morning. I think poorly of myself when I can't bring myself to run the dozens of errands that need to be completed. I wonder what is wrong with me when I simply don't have the energy to cook or clean house. I mentally abuse myself with my negative self-talk.
Today, I am going to try a new approach. I am going to practice being perfectly me. If I do not get everything done, so be it. As long as it isn't going to literally kill anyone and we have the necessities, it isn't the end of the world. Lately, I have been exhausted during the day, but wide awake at night. I will honor that by resting when I am tired, and being productive when I am awake. Housework can be done at any time of day or night (except vacuuming when others are sleeping). Bills, emails, warranty registrations, even grocery shopping can be done in the middle of the night.
I will honor my body cycle. I haven't been able to wake up before 10am lately without being a zombie all day. This means I haven't been taking any substitute jobs because I want the full day of work which starts at 7:30am. I will change that. Instead of trying to force myself to work "like a normal person," I will start taking half day jobs that start at 11:00/11:30am or I will take on more tutoring clients, scheduling appointments when I know I will be functional, and discontinue substituting until spring.
I will honor my mind. If I just can't focus or concentrate, then I will give my mind the break it wants and play games, visit with friends, exercise, or cook. When my mind is a little less turbulent, I will focus on the "serious" stuff, like studying, building my tutoring website, adoption paperwork, etc.
I have bipolar disorder. I have anxiety. In the winter, I can become severely depressed. I thought I had fully accepted it a long time ago, but last week, my therapist asked a very pertinent question: "Have you really accepted your disorder?" Now, I am not so sure. Yes, I admit I have it and I will always fight against the negative stigma of bipolar disorder, but I have always expected myself to "find a way" to prevent the winter depression. I expect myself to find a way to "fix" it, like I am a toy that just needs some super glue or batteries, but I am realizing it is not that simple. There is no cure. There is only management of the disease. My mind and body has needs unique to the time of year, and it is high time I give myself what I need.
Wednesday, December 4, 2013
Life Isn't Always Sunshine and Rainbows
Today is one of those days where I just can't be positive all day. I hurt. Physically, my body is screaming. This cold front is just killing my joints and I have a headache. Emotionally, I just don't have it right now. Every winter, I fight it with all I have. I fight the negative thoughts, the self-deprecating, the crappy esteem, the "nobody loves me" mentality. I fight the thoughts that say "why bother?" It is hard because I know better. I know that it is just the depression lying to me, and the last thing I want to do is make my friends and loved ones think they don't matter when I make comments like "nobody loves me." I know better, but right now, my emotions don't feel it.
Sometimes you just have to feel what you feel and do your best to push through to the other side. I can only hope that my friends and family can understand and remember that when I get angry, sad, depressed, pissy, or irritated, it really isn't me talking. It is the depression talking. I am fighting it with all I have, to hold it back, to lock it away, but this beast is big and breaks down my walls with ease. But this will pass, as it always does. Come the end of February/beginning of March, the clouds in my soul will begin to part again and my cheery smile will come more easily. Til then, I will do the best I can, and I hope you will continue to stand by me.
Friday, October 25, 2013
13 Ways to Help
Well, I stumbled across a blog article today for RA and 13 ways you can help people living with RA. They are GREAT suggestions for how to help an RA patient out, but they can serve a duel purpose. Most of these tips are great for how to help a bipolar patient also so I am including a list for Beepers (as a few of us fondly call ourselves) as well! So here we go!
13 Ways You Can Help People Living with RA
- Ask, "How are you doing?" Really listen to the answer.
- Bring a meal. Breakfast... lunch... dinner...
- Open doors, cans, jars, soda pop, plastic storage containers... without being asked.
- Don't hand them something heavy. Most things are too heavy.
- If you notice an RA'er is having trouble walking, offer to walk the dog or get the mail...
- Notice whether or not an RA'er is having trouble walking.
- Send a "Thinking of You" card.
- Run an errand.
- Do a household chore or give a gift certificate for a maid service.
- Read a blog about RA, so you can learn about what your loved one is dealing with.
- Go to doctor's appointments as moral support, witness, driver, or physical assistant.
- Exchange jokes. Be funny. Pain is a big downer.
- Ask an RA'er to tell you her/his story.
(Note: Bipolar associated mania manifests in every person differently and is often mistaken by outsiders as either "That person is really happy today" or "That person is really pissed off today." Others attribute it to a fun, outgoing personality. The problem is it can be really hard to tell if a Beeper is manic or just a "normal" happy/mad. THEREFORE, this list focuses more on the depressive side of Bipolar.)
- Ask, "How are you doing?" or "How many spoons today?" Really listen to the answer.
- Bring a meal. Breakfast... lunch... dinner...
- Open windows and blinds... without being asked. Any natural sunlight helps fight depression.
- Don't assume a Beeper will remember a list. Write it down.
- If you notice a Beeper is feeling down, offer to walk the dog, sit and chat, or get the mail...
- Notice whether or not a Beeper is feeling down.
- Send a "Thinking of You" card.
- Run an errand.
- Do a household chore or give a gift certificate for a maid service.
- Read a blog about Bipolar Disorder, so you can learn about what your loved one is dealing with.
- Go to doctor's appointments as moral support, witness, warden, driver, or physical assistant.
- Exchange jokes. Be funny. Laughter is a huge weapon against depression.
- Ask a Beeper to tell you her/his story.
Thursday, October 24, 2013
Grand Re-Opening!
I know I have been gone for a while. Things got a little crazy in the last year or so. Hopefully, I am back and I can start sharing my journeys and experiences with you all again! To begin, let me give you a little recap of the last 14 months. Yes, yes. I know you know the general events, but rather than you refreshing your memory by looking at past posts, I will just do it here.
At this time last year, I was wrapping up my student teaching in Arizona. Student teaching was one of the most challenging and rewarding things I have ever done. It truly tested my limits and forced me to think outside the box. I had bad days where I seriously doubted I would make it through, and I had great days where I was in awe at what my students could do. With my classmates and my mentor teacher, I laughed, I cried, I pulled my hair out, and I loved. Despite my fears and inexperience, my students thrived and I finally graduated.
With graduation, I finally got to be back with my husband again. 18 months of living in two separate places takes a toll on a relationship. The transition back to living together and being a team was rough. I had gotten used to depending on only myself. I had gotten used to cooking for one, worrying about only what I needed to do and accomplish. Suddenly, there was another person in the equation again and I had to relearn how to be a partner instead of the boss. It was a long process that I was not able to solve myself, but it took me time to accept the help from my partner.
While this was all going on, my body was adjusting to the new climate. I went from hot and dry to cool and humid and my body did not agree at all! I spend months achy and depressed as I worked with my docs to adjust my meds accordingly. Eventually, the Rheumatoid got used to the weather and I was able to function better and summer came along, improving my mood.
Now, I have settled into my life here in So Cal and I am working toward new goals. My husband and I are trying to raise money to adopt, I am studying for my secondary certifications for teaching in California, I am substituting and tutoring privately, and I am looking into opening my own private school. That doesn't even count all the plans I have for this house and yard!
So as you can see, I never seem to let myself slow down, but I feel that not only do I need to start blogging again for my own sanity, I also need to put my thoughts, feelings, and solutions out there for others again. I may be dreaming, but I believe my words can help others work through tough times in their own lives. As I get back to blogging, I will continue to put coping strategies out there, share my own experiences, delve into more detail on some of the past events, and express new dreams. Please feel free to give your input and suggestions. I want this to be a community where we all help and share with each other.
Wednesday, October 16, 2013
Just Give a Little Boost
There once was a time when my dad and I were at odds over how to handle my Bipolar Disorder. He was of the belief that all you have to do is think positive and you will be positive. Although this is an excellent starting point for most people, it is not always the end all, especially for someone with an invisible illness. It doesn't matter if the illness is something like bipolar or depression, or if it is physical like Lupus or Rheumatoid Arthritis. Plain and simple, mind over matter does not cure everything, and quite frankly, it is one of the quickest ways to piss someone off when they have an invisible illness.
Think about it. Have you ever had something happen to you physically or mentally that nobody else could see, but it was still there, hurting? Maybe it was when a close friend or family member died. Maybe you were sick and someone said you were faking it and no one could figure out what was wrong for a while. Maybe it was a migraine. How about those with nerve pain, muscle weakness, or even cancer? How did you feel when someone told you to just snap out of it or think positive and it will get better? I am betting it felt pretty crappy. And if you have never felt this degrading feeling, just take my word for it and shut your trap. You don't know every person's journey. You don't know the baggage they carry. Stop being so damn cynical and believe someone for once when they tell you they don't feel well.
Now I bet you are wondering why I am ranting about this. Well, I made a comment about how I will always be at doctor's offices until they find a cure for my illnesses. The response asked why do I bother if it can't be cured anyway? Well because I have to be able to function every day. Then this person blew me off and said that I can function just fine. What people don't see is how I let myself wince when they can't see me; how I hobble across the room in the morning because my body is so stiff until I shower; how tears fill my eyes when I once again can't open my own damn jar; how I cry myself to sleep sometimes because I feel lonely even when I am surrounded by my friends; how I take a handful of pills every morning and night just so I can put on that brave face when it hurts so bad to move but I make myself walk normal; how when I stop taking those pills, I literally cannot get out of bed, even if the damn house was on fire; how I recite positive mantras to myself every morning and night to help maintain my mental abilities. Yes, I function damn well on most occasions, but it is because of a million little things I make sure to do each day to make sure I can at least fake it every day.
So before you reply to me after I mention some ailment I have, consider this. Either 1) this load is just too much to handle on my own right now and I have to let some of it out or I will completely lose it, or 2) I consider you a very close friend that I can trust to handle me with care when I let my guard down and let you see the real me. So don't feed me crappy lines like "Think positive and you will BE positive!" I've tried that shit and sometimes it just doesn't work. Instead, stop listening with your ears and start listening with your heart, like my dad did. After a particularly rough night when my dog ran away, my dad and I had a very intense and passionate conversation. He finally listened to the message behind the words and not just the words. He realized that I am not motivated the same way as my mom and brother. He has to take a softer approach with me. Instead of going drill sergeant, offer a helping hand and encouragement. Chances are all I need is a small boost.
Friday, August 19, 2011
Coping with Bipolar
I was forced to use FMLA time at work to cut my hours in half while I recovered. Three days a week, I spent half my day at the program (IOP) and the other half the day at work. The other two days, I took the morning for myself and spent the afternoon at work. This lasted for nearly two months.
At first, I hated going to IOP. I felt like a failure. I was failing my job, my boss, my family, my friends, my psychiatrist, and anyone else who ever tried to help me manage my bipolar. How could I possibly have let myself get so bad? But that is just the thing. I didn't let myself get that depressed. It is a chemical reaction in my brain that I can't completely control. I can mess with it a little through medication and lifestyle choices (a regular schedule, plenty of sleep, exercise, etc.), but even when I do everything exactly right, I will still have episodes. It is hard to see that when you are in the midst of a deep depression though. At that moment in time, I was convinced I could have controlled it and I failed. I was worthless because I couldn't control my own emotions.
As I continued this program, which is really like an intense therapy program, I grew to appreciate it. I had weekly contact with my psychiatrist for quick med adjustments, I had daily contact with multiple therapists, but most importantly, I learned a huge number of new coping skills to replace the unhealthy ones and the ones that stopped working all together. These coping skills help me prevent a return to IOP. And now I want to share some of these tips and tricks with you. For the next couple days or weeks (depending on how often I post), I will pull out a coping skill from my stash to highlight. Learn it. Practice it. Love it. Add them to your arsenal. Then come back here and let me know how it worked for you. *
Focused Breathing*
For today, we will start simple with focused breathing. This is a very simple coping tool, but it is very effective for some people. This technique works best with your eyes closed.
Try your best to block out the sounds and noises around you and focus only on the sound of your breath. Listen closely as you inhale deeply, hold your breath for a few seconds, and then exhale slowly.
Now inhale again while counting to 5, focusing on the sound and feel of your breath. Hold your breath for a count of 5. Now exhale while counting to 10, focusing on the feel as you release the air from your lungs.
Again, inhale, really filling those lungs, feeling your chest expand in all directions, for 1-2-3-4-5. Hold for 1-2-3-4-5. Now exhale slowly and revel in the release for 1-2-3-4-5-6-7-8-9-10.
Repeat this process, focusing more and more on your breath until you feel relaxed. Always remember to take longer to exhale than inhale. This will prevent hyperventilation.
Once you are relaxed, you have two choices according to how you feel. You can continue what you were doing before you became overwhelmed, or you can take a break completely and do something else that makes you happy. If you simply cannot complete the task, it is ok! Hand it off to someone else or put it off til tomorrow (or another time you are feeling more stable). There is absolutely nothing wrong with this. You don't have to be Superman/Superwoman. Chances are whatever it is will not be the cause life or death (unless you are a surgeon or something, then finish the surgery. hehe.).
*Note: I feel like I need to put a disclaimer of some sort. I am NOT a doctor of any sort. I am a bipolar patient merely sharing tools that help me cope. If you have concerns about anything I post, please consult with your psychiatrist or primary care doctor first!
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Thursday, August 4, 2011
My Latest "Great" Idea
The idea? Oh, its a book.
In the past, I have pushed the idea back into its dark hole, convincing myself it would be a horrible idea. I mean, first of all, we all know how sucky of a writer I am (yea right). Second, I get writer's block so easily with academic papers, what makes me think I could come up with enough to fill an entire book? Obviously, not possible. Third, the book I am thinking of writing is all about me, which we know would be boring as hell. Fourth, it would focus on my journey through health issues and life in general as, what I like to call, a Bipolar Survivor. Who the hell would want to read that crap? And finally, it would require me opening up and sharing deep, dark, personal secrets and thoughts for all the world to read.
Yep. Totally a horrible idea. What the hell was I thinking. I should abandon this quest line immediately.
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Thursday, March 24, 2011
Spotlight: Mental Illness
We all know that my spotlight is always on mental illness and bipolar disorder, but today, one of my favorite blogs is spotlighting mental illness for the entire month of march. That's right, Aiming Low is shedding light on Mental Illness. So please take a moment to visit their site. So far they have addressed many things from depression to schizophrenia.
While you are at it, if you have a hard time understanding illness you can’t see, be it mental illness or something else like Celiac Disease or even cancer, visit this wonderful website and read about “The Spoon Theory.” It is one of the best explanations I have ever seen and it has brought me closer to both family and friends through its story.
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Thursday, January 27, 2011
Coming Out
If you are experiencing depression, anxiety, mania, or anything else that just doesn't feel right mentally and emotionally, there is absolutely no shame in getting help. Speak up. Speak out. As Jenny, The Bloggess, reminded me this morning as I read through one of her most recent posts (I got behind), your friends and family would rather have a broken, bed-ridden you than no you at all. "Your friends and family want you…broken or not. Don’t leave. Speak out. Be honest about your condition to let others know that they can be honest with theirs. Together we’ll get through it."
So for those who love you, read Jenny's post, then *speak out* because you're wanted in their life.
For Jenny, and Lori (a wonderful lady in Jenny's post), and for everyone else who suffers in silence:
Friday, January 14, 2011
Most People with Mental Illness are NOT Violent
If you know me in more than passing or you read this blog, you know that I have bipolar disorder. I am not ashamed of it and I don't try to hide it from people. In fact, I try to spread awareness of mental illness because I fight a negative stigma of mental illness every day. No matter who wrote this statement, I hope it makes at least one or two people think twice before immediately passing judgment on someone they find out has a mental illness.
I highlighted my favorite parts. Here is the message:
USPRA Issues Statement on Tucson Shooting January 13, 2011
The US Psychiatric Rehabilitation Association released the following statement in reaction to Saturday’s Tucson shooting in Arizona:
In wake of Tucson’s tragic shooting that shook America over the past weekend, we wish Congresswoman Giffords and the 13 other wounded indivi...duals a speedy recovery, and our thoughts and prayers go out to all of those whose lives were impacted by this act of horrific violence.
With such senseless acts, we often search for someone or something to blame. The assassination attempt on Congresswoman Giffords has generated considerable speculation around the mental condition of the suspected shooter, which has heightened the stigma associated with mental illness. We must remember that there is a weak link between mental illness and violence. According to SAHMSA, nearly five percent of the US population suffers from a mental illness resulting in serious functional impairment, but only a very small group of individuals with mental health issues shows any violent behavior. Most people with mental illnesses are not violent, and most people who are violent are not mentally ill.
While we have no way of knowing whether or not our nation’s mental health system failed this individual, the Tucson tragedy should spotlight mental health policy & the provision of mental health services as a national priority. The best strategy to providing individuals with mental illnesses the assistance they need is to have an accessible system of care that is easy to use. However, because the majority of mental health services are delivered through public systems, these are usually the first programs to be cut in a state budget when money runs short. More socially accepted diseases like diabetes, heart disease, high blood pressure and other physical illnesses don’t experience the same inconsistencies, yet funding for mental health programs seems to fall to the cutting room floor year after year.
In light of the Tucson shooting, we must also increase awareness of the need for mental health services within schools and colleges. The Mental Health on Campus Improvement Act attempted to increase accessibility to a range of mental and behavioral health services for students—including a focus on prevention, identification and treatment of students in college and university settings—but failed to gain any traction in the last two Congresses. We must realize that only by providing resources for prevention and outreach programs, can we ensure that students can obtain the support they need in order to recover and re-establish themselves in the community.
USPRA hopes that this tragic event brings the essential mental health system reforms that we so need in our nation and we will continue our responsibility to urge legislators to effectively address the needs of individuals with mental illness.
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Tuesday, December 7, 2010
On To a Better Day...And Maybe a Better Title??
The last few days have been a time of learning for me. If you know anything about me at all, you should know how I hate, hate, HATE drama. You should also know how I try to avoid conflict like the plague. Yes, I am one of those people who prefers to stick their head in the sand and wait for it to go away rather than deal with a problem head on. You can now imagine why I had so many problems with relationships in the past.
So when a conflict began to develop between a group I am part of, my automated response is pretend nothing is wrong. Maybe say a couple things that wouldn't ruffle too many feathers, gloss over the situation til we get over this hump, and hope for the best going forward. Unfortunately, this just caused things to steam, simmer, boil, then basically explode. Way to go Alicia. Your method of dealing with conflict is soooooooooo effective.
Then, because of my conflict adverse nature, all the pressure was put on a good friend to solve everything. I felt horribly bad about it, still do, because she has her own crap to deal with. I know I should have a better backbone than I do, but unless it is through typed words, I just plain suck at dealing with confrontation. On paper or through email, I kick ass at it. In person or on the phone, I fold like a piece of tin foil. Lesson one: Just how bad I am at conflict resolution in person.
Another thing you should know about me - stress is a HUGE bipolar trigger for me. This whole situation caused an incredible amount of emotional stress on me. On top of that, it is winter, my worst season of the bipolar year. Add the drama to the winter blues I have been fighting and it results in an emotionally unstable Alicia. I should have put up a sign on my door that says "CAUTION: Unstable environment. Downpours of tears and floods may occur." This may have prevented my neighbor from getting cranky, irritated looks from me yesterday, and it may have prevented another friend from being caught off guard with tears. Follow that with my hubby being pulled over for a registration issue that was supposed to be taken care of...yea...complete meltdown. Lesson two: My mask doesn't work as well when I am being overwhelmed with multiple things going wrong at once.
But then I found comfort in an unexpected place. When I went to apologize for blubbering all over my friend, I was instead reassured I had no reason to apologize. Life was just throwing crap at me like it does to everyone occasionally and I was just doing the best I could to deal with it. After a long talk and a few more tears, I was more comfortable with the situation. I was reminded of something that I know in my head but frequently forget - if these friendships are supposed to last, we will make it through this rough patch. If they aren't meant to last, I need to accept it and move forward because there are others out there I am missing out on by dwelling on things I can't control anymore. Either way, there is nothing I can do at this moment. Only time will tell. Lesson three: I have some really awesome people in my life. Lesson four: I have a really, really crappy memory...or maybe that should be Reminder One for my next post?
The important part of this though, I will survive and today is a new day...and so far, a better day too!
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Friday, December 3, 2010
Just Cruisin' Under the Surface
The challenge now is spreading understanding of what is going on with me to those I interact with every day in my life. Many of the people I spend time with here in Tucson met me when I was in a bit of a mania. They are used to the fun, smiley, energetic, flirty, party girl. We would go out to the bar and drink and dance and have a good old time or play poker or any number of other things. Now I am hanging out in the slightly depressed area. Not badly depressed, just a little bit -- like a 2 or 3 out of 10 (with 10 as the worst) -- just enough to make it so I don't want to go out and when I do, that I don't get quite as much enjoyment out of things that I normally would. But that is the bipolar roller coaster ride and they will have to learn to love both parts of me...that is if I can take off the mask of everything is fine and stop making excuses for why I can't do something...
*hint: I'm really not as busy as I make myself out to be...
So, can you love both parts of me?
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Tuesday, October 19, 2010
The higher they fly...
A couple weeks ago I posted about my fun little roller coaster ride of bipolar hypo-mania. Well, that was the upside of the coaster, and now I am on the down-side. The problem is I don't know how my "new" friends here in Tucson will take it. I am blessed to have true friends who love and care for me all over the country. No matter what stupid ass thing I do, I know you will always be there, waiting to help me pick my stupid ass up off the ground. Luckily, I also feel like I have built some great relationships with some people here, but much of them were forged in "happy, happy, joy, joy, everything is freaking awesome and perfect and I can rule the world" Alicia. Now "I am sad and pathetic and not worth anyone's time and everyone is only friends with me cause they pity me and FML" Alicia has emerged. As you can imagine, the first version is a lot easier to be friends with than the second version. So what is the first thing I do when the latter Alicia comes around? I push people away naturally! Makes complete sense, right? DUH! Sigh.
So now these "new" friends are hearing go away, leave me alone, I'm not interested and even as I say this stuff, I think in my head, WTF are you doing Alicia? It's like word vomit - an uncontrollable spewing of words despite what the speaker actually wants to say. Word vomit is inevitably followed by seclusion because you can't believe what you just did and you can't take it back because then you just look fickle and indecisive or like you are playing games with people. Then I come here to spew word vomit all over my blog because it is the only place I seem to be able to speak even semi-coherently. Don't you feel special? You should, after all, I am actually helping you. See, I screw shit up so you know what NOT to do. I sacrifice for you, my blessed reader.
Now, what is the lesson here class? I hope you know because I'm not really sure. I just wonder whether these people know me well enough in such a short time to take what I say with a grain of salt while I am down, or if these newly formed relationships can survive the crap I am bound to put them through as I try to dig my way out of this darkness.
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Friday, October 8, 2010
Where have I been?
Mania is a condition of extreme euphoria. As I understand it, and I am no doctor, everything is in excess and often puts yourself at risk physically, financially, legally, etc. Sometimes it presents with psychosis, where reality and fiction get blurred (ie. you may think you can fly or you are super strong and can stop a moving vehicle). Frequently a manic episode ends with inpatient hospitalization for someone "acting crazy" according to some layperson in the victim's life. I say victim because the patient is a victim to their own chemistry. Some more familiar cases of mania include sober, naked people running down the street, people attacking random strangers, and someone jumping in front of a subway train in New York. I have never experienced a true mania...that I know of. I quantify that because mania is also accompanied with memory loss occasionally and well, if you know me, I already have a shitty memory.
Hypomania is a lesser form of mania. Hypo = less than. Connect the dots. You still have an overwhelming sense of happiness and euphoria and do things in excess, but typically the risks you take are much more mild. Usually your life is not threatened and there is definitely no psychosis and you are fully aware of your actions. For example, you don't sleep for days on end, you spend hundreds of dollars on a drop of a hat though you know you shouldn't, you go through multiple sexual partners in a week or even a night. All these things carry risks, but not as immediately threatening as mania. The bad part is hypomania can very easily turn to mania and the victim/patient has no idea.
My last four weeks or so have been full of sleepless, drunken nights, spending sprees, irrational thinking, etc. The only good part is I recognized it a week or two in and I limited the possible damage by handing over my debit and credit cards and cash to my husband. I essentially have an allowance until I level out. Then it all came to a screeching halt four days ago with this damn, God-awful flu. UGH! Knocked me on my ass enough to get me to go see the shrink. No more anti-depressant for me! Duh. Bye bye Zoloft. But now that the flu is subsiding and I am recovering (praise the Lord!), it remains to be seen if the hypomania has passed, or if we are going to have some more fun! ;) It's been 10 years since I had a good upswing. In a way, I figure if I am smart about it and I keep myself limited in the damage I can cause (and my hubby has the shrink's number), then why can't I live for a little bit like the college kid I never got to be? I like bars...and I like dancing on them....
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Saturday, August 14, 2010
Have you see my mask today?
It isn't your normal kind of pain like if you burn yourself on the stove or you smash your thumb with a hammer. No. This is an internal pain. Sometimes it is like someone is twisting your insides around, your blood is burning, or you feel like you have to vomit, and other times, it's just a generalized pain that you can't even begin to describe. To top things off, rarely is there a good reason to be down. Often it just happens out of the blue. Heaven forbid you should actually be sick when the depression hits because it makes it spiral down even faster.
And then we have the public. Our friends. Our family. Our coworkers and clients. Too often we can't afford to be down and we certainly can't let anyone know. We develop masks -- masks to hide the pain. We plaster a smile on our face and pretend everything is okay. We laugh when we are supposed to and we function as best we can. We hide in bathrooms when it gets too overwhelming and fake a migraine when we just can't recover anymore and need to hide in our room. And on the few occasions when we just have to be in public and we don't have the energy or perseverance in us to maintain that mask showing "everything is just fine," someone inevitably asks what's wrong and we simply say we don't feel well. We have a stomach ache or we ate a bad lunch.
No one ever bothers to inquire deeper than that. We don't want them to. This is why we choose our excuses so carefully. We have an arsenal full of them. You will never know them all and we come up with acceptable new ones every day. All you can hope for is that one day, you will know us well enough that we will trust you not to cause more hurt if we take our mask off in front of you. And if that day comes, we hope you will be empathetic enough to hold us when we cry.
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Thursday, July 8, 2010
What are you thankful for?
After a conversation with my mom last night, I got to wondering how many of us wallow in the mundane or bad things in our life. I know I used to only see the bad. When you have as many medical issues as I do, with more coming up every day, sometimes it can be hard to see past the pain, discomfort, and disability. Every day I would wake up thinking how much it sucked that I had to go to work that day, or how horrible my body ached from my RA. Before my husband, I might think how much I wanted and deserved to have a good guy laying in bed next to me every morning. Waking up alone sucked. And when the bipolar gripped me in a major depression, I would curse that fact that I even woke up at all.
But then a few wonderful things happened to me. I met my husband. He lit up my world. The problems didn't go away, in fact some of them got worse, but he always made me laugh no matter how bad I hurt (mentally and physically). The negative mornings became fewer, but even then I still had days where I would wake up looking at only the bad things, though it happened less often.
Then another person came into my life. Or rather, became a part of my life since I had already been working with her for several years. We became close friends when her husband ended up in ICU and was in the hospital for months. She changed my perspective as I watched her always have hope while her husband teetered on the edge of life and death. No matter how scared or frightened she was, she always had hope. And then there was the joy and love when he finally got to go home. Going through that experience with her, being there for her and with her, changed me. It taught me to value life more. It taught me to value every day, every moment I have on this earth because it could all come to an end unexpectedly.
Now when I wake up in the morning, it is rarely with disappointment or a negative thought. I am by no means perfect and do still have my cranky mornings, but they are now few and far between and usually only when severe physical pain is involved.
This morning my first thought as I felt my arm throbbing in pain was "I am so lucky that I have a husband and roommate that are supporting me through this painful time." They help me accomplish the daily tasks and chores that need to be done and they make me laugh. This morning, I was truly grateful to be alive.
So tell me, what are you thankful for today?
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Friday, April 16, 2010
Psych Week on the Discovery Health Channel
Any kind of mental health issue has a stigma attached to it. In reality, most people have had to deal with some sort of mental health issue in their life whether they know it or not. It could have been they went through a depression and didn't know it, didn't care, or denied it. It could be they are friends with someone who has a disorder and have seen and experienced these symptoms, yet this friend hasn't confided in them because they are afraid of being rejected or they are still in denial themselves.
Too often, all we, the mental health patients, need, is just a friend to talk to us, yet many of us, especially the newly diagnosed, are so scared to talk to anyone that we don't get the help we need. Our first choice is usually either denial or hatred of ourselves. Both are destructive but it is really fear that fuels us. Fear of rejection due to our condition. Fear of treatment. Fear of stereotypes. Fear of being the thing that we already fear the most.
So what can you do when someone is having a hard time? Don't accuse, don't ask if they have a mental health issue, as that will just make them defensive. Instead, just ask if we want to talk. Show us you intend to be in our lives despite our quirks, then one day we will confide in you, and you just might save our lives by just listening.
In a few weeks, the Discovery Health channel is going to be starting a week-long series on just this topic - psychological issues. This week is going to be about awareness, understanding, and bring about change. Please take the time to either watch the series or DVR it because I can almost guarantee that someone you love has a mental health issue, whether it is diagnosed or not.
http://health.discovery.com/tv/psych-week/
P.S. I will repost this the week of the series too as a friendly reminder. ;)
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Monday, March 29, 2010
The Difference Between "I" and "II"
Sometimes I wish I did hear other voices. Then at least I could have a conversation with someone when I was all alone. Other times, I think they would be quite entertaining. I always picture Jan Brady in the Brady Bunch movie with her voices going back and forth. I can almost imagine what it might be like to have them fighting back and forth in my head. Hehe. I think it would be rather entertaining...unless I am trying to sleep. Then my husband would just look at me funny when I yell at myself to shut up.
Then there are the ever popular medical history questions. The problem with those forms is they always ask "Do you have or have you ever had:" and then there is this whole list of issues, yet they don't have you differentiate between past and present. So I have all these things marked and the guy was all surprised by how many things were going on and I had to sit there and go through the list again with him, clarifying what was past and what was present. Stupid forms. Just make one column of check boxes for past and one for present. There. Problem solved. You're welcome.
Ok. So I really am not blogging to complain about forms or to entertain myself with thoughts of voices in my head. The biggest reason is for the diagnosis change I had when leaving the office. As you know from following this blog, I have Bipolar Disorder. For the last 12 years, it has always been Bipolar II. For those not familiar with the different designations of bipolar, Bipolar II is often perceived as a milder form of bipolar, characterized with more downs than ups, and the ups never get to full blown "mania" stage. Instead they linger just below that in a state called "hypomania." Bipolar I is often perceived as the more severe form with both full blown manias and deep depressions. Sometimes, Bipolar I can be couple with Psychosis which will involved hearing things (yes, those voices I was chuckling about), seeing things, or basically being out of touch with reality. There is also another form of rapid cycling bipolar but we won't get into that now. I was always content with the Bipolar II diagnosis since I had a much more difficult time with the depressions than the hypo/manias.
Well the news I received today is that I have been upgraded, in a way, to Bipolar I. I didn't think much of it at first. Bipolar is bipolar and it will have the same stigma no matter what category you fall into. It isn't like Bipolar I is similar to paralysis while Bipolar II is a stubbed toe. No. The stigma goes, you have bipolar, you are a crazy, psychotic, lunatic who is either going to kill us all or yourself. But then on the drive home, it hit me more and more that this could possible mean something. Either 1) the doc doesn't know what he is talking about, 2) the other docs didn't know that they were talking about, or 3) I have changed. I no longer know what to think now. Do I really have a bigger problem with depression or do I actually have a problem with mania too and I didn't realize it?
It is funny how the simple subtraction of a Roman Numeral "I" can feel so different. And then you start to question yourself and everything you thought you knew about yourself. But should I really be questioning that? Blue is still blue whether seen in bright or dim lighting, but blue is not blue when you add yellow to it. So now I find myself spinning in circles in my head, wondering how I can comes to terms with this one, tiny, small change. How can one single number change so much in my head? Or maybe that is all this is? Just change, something I already don't deal with well. Damn I hate change.
